Lynn Levis's Fundraiser
Please Consider Supporting AXYS!
I'm attending their annual conference in Atlanta this summer to learn how we can best support Sammy's genetic variation.
You wouldn't know it by looking at him, but Sammy was born with a rare genetic variation known as 48XXYY. It presents (and will continue to present) a variety of challenges for him, and we struggled at first because none of his local medical team knew anything about it.
We then learned about AXYS (pronounced axis), the Association for X and Y chromosome Variations. It's an advocacy, education, and support group for individuals with chromosome variations and their families, and it's been an invaluable resource to us. AXYS let us to The XXYY Project, one of its subgroups that connects parents, medical professionals, and service providers to guide males living with 48XXYY through social, physical and emotional challenges. I'm now a proud member of the XXYY Volunteer Team.
I'm so excited to attend the 2025 AXYS Community Conference in Atlanta, GA this summer, where I'll hear from medical professionals and leading researchers on X&Y chromosome variations as well as meeting others in the X&Y community from across the globe. Though I'll be going alone this year, we hope that the whole family will be able to attend the next conference!
If you know our family, you know that Sammy is at the center of everything we do. He is a bright and charming boy who is working so hard at school and in his multiple therapies. It's not an easy road, but our journey will certainly be easier because of the support we get from AXYS.
If you're looking for a great cause to support, please consider AXYS. Your contribution will support Sammy and so many other awesome kids. Our family thanks you. <3